No More Halo

Sorry for those of you that checked back on the 13 and no update....I think I was so shocked and had to get to planning!!!! ...So when we went on the 13th he said how does next Monday sound!!!! I said Music to my ears and it was a done deal!! We went last Monday, the 19th and the halo was removed. The Dr. decided that to avoid a halo on the Femur he was going to stunt the growth in the opposite leg, which involved putting a plate in the other knee to allow for the halo leg to catch up in the femur area. This was a quite painful surgery but AGAIN she pulled through and is doing very well. She came home pretty upset that he had to do this but understands everything and is ready to do what she has to so she can be done for the summer!! Being that she is only 4 years old she has learned so much over the last 6 months and is the bravest 4 year old in my book!! This plate is made to stay in for two years or until they get the growth they are looking for. We start therapy tomorrow to work on her ankle. With her leg being shorter she has walked most of her life on her toes and her tendon is very tight. She has to get this worked out to avoid any surgery on her heel. Please continue to pray for healing of both legs, therapy to go as planned, and that we continue to get good reports from here on out!! Until next time......

Countdown!!!!

Looks like we are in our final weeks with the halo friends!!!!! The Dr. is very pleased with the way that things are going and said everything looks great!! The fibula bone is healed back together and the tibia is almost healed....not much longer, I think Haleigh will be getting her New and Improved leg back soon!! Please continue to lift her up for patience in these final days because she is so ready to be normal again!! Thanks to all whom are praying and keeping up with our little super hero!! We go back to the Dr. April 13th. Check back then...........

GOD IS GOOD!!!!

Two Months Down and Haleigh is continuing to do awesome!! We went to the Dr. on Friday and she has 4cm of new growth!!! This means we only have 1cm to go which should be around February 9th, and then the healing of the bone begins. The bone has to fuse back together once we reach the full length of 5cm. The Dr. said this should take about 3 months. How awesome would it be if she had this off before her birthday on May 12th!!! Not only is this awesome news but our little over achiever is also WALKING on her leg some. Nothing is going to keep that little angel down. Although she is doing well it is still hard for her to understand why this has to be her going through this, and has had alot of self esteem issues. Please continue to keep her in your prayers for strength and a speedy recovery. Thank You for all of the support!!! We Love you!

Bump in the Road

Sorry I am just now getting to update. Friday we had a check up with Dr. Epps and he informed me that the bone was healing very fast. He said he would be in contact with me that evening reguarding what we would need to do. Before he could call me to give me the news Haleigh re fractured the bone that was healing to fast. When we got to the hospital he informed me that other than her being in the most pain anyone has ever been in that this was not that bad after all that she had done this because he was about to call and tell me that we had to go back into surgery and do this all over again. So yes the break was a blessing in disguise and God does work in mysterious ways but I would never want her to go through what she went through on Friday again. I have honestly never felt so helpless and scared in my whole life. Haleigh was admitted on Friday for pain management after screaming for 6 hours straight the morphine and muscle relaxers finally worked. They kept her on the pain pump and she was released on Sunday. We are home now and she is pretty much back to normal. Once again she has amazed me through this and is doing very well!! Thanks for all the prayers and please continue to pray that he bone will do as it is supposed to from here on out.

Going Strong

We had Haleigh's first follow up visit yesterday and the Doctor said everything was great!! Our first day out of the house was a great success even though Haleigh decided to tump her wheel chair over in the Olive Garden. Besides the fact that she freaked EVERYONE in the place out she was OK!! Pin Care is no big deal now, she sings a song she learned at bible school to help her be strong while we are doing it. The song says be STRONG and COURAGEOUS do not be terrified cause the LORD GOD is with you......... Makes me smile and want to cry all at the same time!! She is getting around good in the house and has started holding her leg and scooting on the floor. Very determined that she will NOT miss anything. She does get frustrated and wants "that thing" off of her leg but over all she is still being a fighter!! We will be starting therapy this week so we pray that will not be a painful experience for her. Hope you all have a great weekend!! GOD IS GOOD

The pics below are of her first day out of the house, the leg cover we made to keep her warm, and of course we had to PIMP the walker out!!

What a Trooper

I titled this post What a Trooper because Haleigh has truly been a trooper since we have been home. She is pretty much not on any pain meds at all which amazes me!! Pin care was tough the first time because there were bandages to be removed and that of course was extremly painful.... Today she told me she was going to be strong and she did great!! I started turning the struts yesterday and so far she has done ok. She was a little sore yesterday but has not complained about it today. She has definately learned how to use her wheel chair and is able to reposition her leg by herself now. Nights are long but getting better. Super Daddy rigged up a tarp for Haleigh to be able to go out in the snow so she would not miss out on all the fun. She was trowing snowballs and loving it!! I will post pics soon!! Continue to check back for updates, I plan to keep this going until she is "Halo" free!! GOD BLESS YOU ALL!!

Home Sweet Home

Well this morning Haleigh woke up singing (which we have not heard since Sunday)and decided she was ready to go home. I told her she needed to get up be nice and do her therapy so we could go home. She amazed me once again and ended up walking 10times more than they expected. Needless to say that I was convinced that it was time to come home!! We learned how to do pin care today, which was very painful to her and waited on her wheel chair, walker, and potty chair to get there then we packed up and headed home. The ride home went well, she was singing and dancing to Hannah Montana just like normal and could not wait to get home to show her brother and sister her new walking and rollings skills!! She is now snuggled up in her bed watching TV and to top it off she has not had any pain medicine since 2:30 today and still has not asked for any!! Lets hope tonight goes as well as the day does. GOD IS GOOD!!

Please be in prayer as we adjust to having her home. So far so good!!

Thanks again for all of your support!! Also Thank You GOD for bringing our little girl home without any complications!!!!

Blessings,
The Shaver Family